VOICE Study:
Valuing Opinions and Insight from Cancer Experiences
Study Goals
The VOICE Study seeks to better understand the health, health care, and life experiences of people diagnosed with cancer as an adolescent or young adult (AYA), ages 15 to 39. The study aims to identify the best approaches to care, how to improve outcomes, and how to better address patient needs.
Importance
AYAs are in a unique phase of life, and their cancer care is understudied compared to the care of children and older adults with cancer. Improving their cancer care requires a research program focused specifically on their needs, concerns, and perspectives.
Unlike younger and older populations, individuals in the AYA age range go through major life transitions, from moving out of the childhood home and seeking employment or higher education, to establishing a career and family. A cancer diagnosis in the context of these life transitions can present unique challenges. The VOICE Study addresses a spectrum of challenges that AYAs with cancer face across health care and life transitions.
Research Team
The multidisciplinary, collaborative research team includes epidemiologists, health services researchers, biostatisticians, pediatric and adult oncologists, and AYA cancer survivors.
Principal Investigators
This research program involves researchers and staff at several institutions. Collaborating institutions include:
- Kaiser Permanente Northern California
- Kaiser Permanente Southern California
- Kaiser Permanente Washington
- University of North Carolina at Chapel Hill
- University of California, Davis
- Huntsman Cancer Institute, University of Utah
- Fred Hutchinson Cancer Center
- Cactus Cancer Society
- VA Greater Los Angeles
- Mayo Clinic
- University of Michigan, Ann Arbor
Funding
This study is funded by a grant from the National Cancer Institute, P01CA233432.
Publications
[to come]
QUESTIONS?
Contact us at:
1-855-405-0600 or
KPWHRI-VOICEStudy@kp.org
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